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Sharing your Patient Record

Please read this information carefully.  It will give you information about how your data is shared for the purposes of direct patient care

Summary Care Record

Summary Care Record (SCR) is an electronic record of important information about a patient's health and contains information about current medications, allergies and any bad reactions to medicines.  Additional information may be added over time if a patient gives their consent.

Summary Care Records are especially useful if you visit a different doctor or hospital in the evening, in an emergency or at the weekend, or if you are away from home.

You can also phone the Summary Care Record Information Line on 0300 123 3020 or visit their website https://digital.nhs.uk/summary-care-records for further information.

This Practice is participating in the Summary Care Record and patients who have not opted out will currently have a Summary Care Record.

You can choose to opt out of having a SCR at any time.  If you do opt out, you need to let your Practice know by filling in an op-out form.  If you are unsure whether you have already opted out, you should talk to the staff at your GP surgery. 

You can choose to add any information to your SCR that you think will help improve your care.  This can be of particular benefit to patients with detailed and complex health problems.  You and/or your carer should discuss anything you wish to add with your GP.

If you are a parent or guardian of a child under 16 and feel that your child is able to understand this information you should show it to them.  You can then support them in the decision to maintain an SCR and whether to include additional information.

More Information

Watch or download the materials below for more detailed information:

Subscribe to the newsletterSummary Care Record Opt out Form

Subscribe to the newsletterSummary Care Record Information Leaflet

Subscribe to the newsletterSummary Care Record Adding Additional Information Leaflet

Video: How SCR works for hospital admissions

Video: How SCR work away from home

Video: Access to SCR in emergency situations


Enhanced Data Sharing Model (EDSM)

The medical record computer system that we use across our Practice is called SystmOne and is widely used in this area and across England.  This system gives the facility to share your electronic healthcare record with other health providers involved in your care, using the "Enhanced Data Sharing Model" (or EDSM).  Today, electronic records are kept in most of the places where you receive healthcare, for example at your GP surgery or Out of Hours clinic.

This care service uses the clinical computer system SystmOne, which enables your full electronic record to be shared to anyone involved in your direct care, across different healthcare services.  A full list of the care services that use SystemOne is below.

Which care services could I go to that could access my patient record?

  • GP practices
  • Community services such as district nurses, rehabilitation centres, telehealth and diabetes services
  • Child health services that undertake scheduling of treatments such as vaccinations
  • Urgent care organisations such as Minor Injury Units and Out of Hours services
  • Community hospitals
  • Palliative care hospices and community services
  • Offender health - care providers within the health units
  • NHS Mental Health trusts
  • NHS Hospital trusts
  • Accident & Emergency departments
  • Care Homes
  • Pharmacy
  • Social care - registered and regulated professionals within social care organisations coordinating care (not social care providers)

You have choices about whether or not your information is available to other providers who care for you.

Why is sharing my health information important?

Your electronic health record contains lots of information about you, including your medical history, the types of medication you take, any allergies you have and demographic information like your home address and your next of kin.

In many cases, particularly for patients with complex conditions, the shared record plays a vital role in delivering the best care.  Health and social care professionals can ensure a coordinated care response, taking into account all aspects of a person's physical and mental health.

Whilst some patients have extensive knowledge of their conditions and care requirements, this is not true for everyone.  Many patients are understandably not able to provide a full account of their care.  The shared care means patients do not have to repeat their medical histories at every care setting, or make guesses about their previous care.

A shared record ensures health or social care professionals always have the most accurate, up to date information.  They can rely on their colleagues, sharing accurate and relevant data in a timely way, to provide you with safe and efficient care.

Sharing your record

To provide the best care, your electronic health record will be made available to other services involved in your care.  Until you are registered at one of the care services above, no information about you will be shared to them.

Although your record is automatically setup to share your information, you can ask your doctor for this option to be switched off.  This will mean none of the information recorded by your doctor will be visible at any other care service.

The only exceptions when your data will be accessed are:

  • When you visit the other care service, you give your permission to override your previous dissent, allowing them to view your record including any items marked as private
  • If your clinician has concerns regarding your wellbeing related to safeguarding, for example concerns about domestic abuse

If you would prefer that the override option above is never made available, you have the ability to request your doctor prevents it.  However, this means your data will never be available at other care services.

Can I choose what is made available?

To give you the most personalised care, it is recommended that you share your whole health record with every service that cares for you.  However, you have control over your record and have the choice to specify specific elements of the record you don't want to be shared.

For example, if you have had a consultation about a particularly sensitive matter, you can ask for this section of the record to be marked as private.  That way, even if you consent for another service to see your record, that consultation will not be shown.  If a consent override is used, then consultations marked as private will be accessible.

What choices do I have?

When thinking about how your information is shared, you as the patient can specify three main controls:

  1. Do you enable your record to be shared at all?  If you have said 'yes' to sharing out from this organisation, for every care setting you visit you still get to decide if they can view your record.  You do not have to make the same choice for every organisation.
  2. You can specify entries in your record that you want to remain confidential.  These can only be viewed by the care service they were originally recorded at (unless the consent override is used for the reasons stated above).  You can then decided if the rest of your record is shared at each care setting you visit.
  3. Saying no at this stage means no other care service can see any of your record.  If you don't want your record to ever be viewed by anyone you have a further choice to request that consent override is prevented.

Providing consent to view

When you start receiving care from a care service (that uses SystmOne), you have the right to either agree or disagree that they may view your SystmOne record.  The health or social care professional seeing you should ask your permission for them to view your electronic record.

If you answer YES: That care service will be able to view information recorded on your electronic record by other care services (excluding data you have requested to keep private).

If you answer NO: That care service will not be able to see any information recorded anywhere else (even if your record has been set to share from any other care services).

As a patient, you have control over who can see your health information.  Even if you give permission on one occasion, you can still change this at any time.

Haven't I agreed/disagreed to do this before?

EDSM may seem very similar to patients as the Summary Care Record (SCR).  The Summary Care Record contains only a very small part of your record that is available to be seen by clinicians who might be treating you in A&E departments, Walk In Centres or if you register temporarily somewhere else within the UK.

The Summary Care Record allows other NHS Services to see your current medications and the drugs that you are allergic or sensitive to.  Your Summary Care Record can be enriched by your GP to include information that it is important to pass on in the case of an emergency.

If you would like more information on how your data is shared please talk to your healthcare professional.


Confidentiality & Your Medical Record

The practice complies with data protection and access to medical records legislation. Identifiable information about you will be shared with others in the following circumstances:Locked blue folder

To provide further medical treatment for you e.g. from district nurses and hospital services.

  • To help you get other services e.g. from the social work department. This requires your consent.
  • When we have a duty to others e.g. in child protection cases anonymised patient information will also be used at local and national level to help the Health Board and Government plan services e.g. for diabetic care.

If you do not wish anonymous information about you to be used in such a way, please let us know.

Reception and administration staff require access to your medical records in order to do their jobs. These members of staff are bound by the same rules of confidentiality as the medical staff.


Care.Data

In July 2016, it was announced that the Care.Data scheme was to be scrapped.

This scheme was to link information from all the different places where you receive care, such as your GP, hospital and community service, to help provide a full picture.  There were concerns over patient information being identifiable.



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